Thoughts on Morality (Shower Post #4)

I think it’s a fair thing to say that the more we get older, the more jaded we get- we have less patience, we have less faith in others, we become more cynical or realistic, depending on your perspective.  I think for me, I have definitely become more cynical/realistic with age.  Whenever I go through something difficult, I think, why does no one know or feel my suffering?  Why does it feel like I am even more isolated and alone?  Instead of having faith in others, we fear reaching out because we don’t trust that anyone actually cares, or sincerely cares.  I think this is the logical path that people follow that can lead them to such a dark place, to the point of even suicide.  At this point, it seems like your life doesn’t count anyway, and it won’t matter.

For me, I get frustrated because in chronic illness, the suffering doesn’t end.  It’s not like a cold or a break up where your circumstances may improve eventually; they don’t.  You do.  Your mind sinks or swims.  And then I hide my fears because I’ve had it proven countless times to me that in the end, it seems I am the only one who can fully do anything about what I am going through.  Besides my dad and sometimes my mom and a few close friends, I am pretty much alone.  Almost no one else is there beside you every second living your life, observing it, experiencing, as much as you, having that strength of endurance.  People will enter and leave your life, maybe be a blessing even for the short run, but they can always fade at any given time.

We are all so scared of showing vulnerability, of laying out our cards and letting everyone else judge us, embrace us, or reject us.  Especially when we go on social media like Facebook and Instagram, and we are flooded by images of hot, fit bodies, attractive portraits of people laughing, having the time of their lives with their significant other on their vacation, surrounded by friends, or eating delicious food.  It is true that the positives and highlights are part of our lives, but they are only a small snapshot of the entire rhetoric.  Our whole society encourages us to hide our insecurities and to only portray our best selves, but it isn’t always the whole picture, the whole truth.

I do the same.  I only put up pics of my happiest moments of when I look good on Instagram.  It does make me feel better to take pride and look at these images and tell myself “Wow, my life is not bad!”  It does make me feel more or less validated when I get many likes.  But I also wish to be brave enough to allow myself to receive likes on my ugliest, saddest, most depressing snapshot of my life- even more so, I want to be brave enough to be okay with no likes if that’s what happens.  I may be afraid of judgment, or of dragging down other people’s happiness- but so what?  We gotta inject some sincerity and realism in what’s really going on in our lives, to show others our scars so that they can be more accepting and forgiving of theirs.

People don’t see me through the moments where doctors discuss my life span and ask deep cutting questions like “Have you ever had suicidal thoughts” and me, reluctantly admitting “yes.”  People don’t see me when I wake up in the morning and count the amount of meds I daily pop into my mouth or inhale.  People don’t see me when I am at home, physically and mentally too tired to complete simple tasks like laundry.  I fight everyday to live a fraction of energy and memories that others take for granted.

Maybe part of this is my fault, for not being more open, and for withholding part of the truth, I actually get more judged than not, because people see a “normal” young woman abusing a handicap sign, people see my beaming grins on my Insta, and people see me when I am trying my absolute best to participate happily in life.

I guess for me, faced with the morality of my being, and always reminded of how small of a drop of water I am in the ocean, I keep questioning, how do I make my life count?  It is not going to last forever, but that is out of my hands.

What I wish, is for people to think more on this question, on how they impact others, and to be part of a greater plan for us all to have faith that if we fall, the ones around us care enough to catch us, as cheesy as that metaphor is.  To come to terms with our true selves and the imperfection we are- taking pride in our strengths, accepting our flaws and vowing to work on improving them.  So that we give encouragement and faith to others, and in turn can let ourselves fall in faith.  Knowing that we are trying our best, even if that’s not what it looks like, even when others tell us we are crying wolf and victimizing ourselves, them telling us we’re fine, but us knowing for ourselves that we are not okay, and knowing that continuing to do our best is okay, it is enough.

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Disney + Worries

So… my family is planning a trip to Harry Potter World and Disney and I’m simultaneously excited yet super anxious.

The biggest hurdle is that my therapist suggested that I start using a wheelchair of some sort so that I can avoid becoming exhausted to the point of major discomfort and fatigue, and tense muscles.  I had never considered using a wheelchair before, and the hypocrisy that is me, is that when I see other people in wheelchairs, I don’t think much of it, yet when I think of ME in it, I am riddled with a million feelings: perhaps

Shame, that I have to submit to a wheelchair and can’t make it on my own two legs,

Guilt, that I don’t really deserve to use a wheelchair and am a “fake” illness person (doesn’t help that tons of other people have doubted my illness over the years), and that my family will have an extra task to do in pushing me around,

Embarrassment when I have another extra thing to make me feel different, and perhaps

Relief and Hope too, that this might be much better of an arrangement for me energy-wise, if I could only wrap my head around accepting it.  The truth is, my whole life I’d lived in the mindset that my lungs were going to eventually heal and become “normal” when I reached adulthood aka college, yet I was slammed with the ugly reality when I switched over to an adult doctor, who told me I should be prepared for lung transplant evaluation instead.

My whole life, I’d been competing with people functioning at full capacity, when it was literally not possible.  And even after the sad realization, I could not bear to face the reality that it was, and continued to live in doubt and silence.

After a few years of therapy now, which I started on and off 3 years ago, I think I’m becoming better at shifting my perspective to a more positive one, but it’s still a really long and bumpy road.  I have to expect that most healthy people, especially ones at my age, will simply not get it, or even have the patience to try to get it, because they have their ableist privilege, and all I can do is control my own mentality.

The list could go on forever for all the rough moments in my life when other misguided people mistreated me and misunderstood me, believing I was taking advantage, or lying, “playing a victim”, or one thing or another, just because there was no visible evidence in their eyes.  And it caused me to continue to doubt my own capabilities and limits as well for a long time.  But now I realize that you do not let other people’s ignorance hurt your own knowledge and perseverance. You are not any less just because you were given less spoons.

I have to learn to forgive people and move on, because for a long time honestly, I’ve let myself get caught up in the unfairness of it all, and the rudeness of others causing me so much hurt and pain.  No more.

Acceptance in Mind, Heart, and Soul

I often find it difficult to understand how people have that kind of faith in God or a bigger picture.  I want to make sure I try to obtain that kind of peaceful acceptance in my heart, without stopping to fight for the way I want to live, my right to be who I want to be and who I am, and becoming complacent by giving it up to fate or that it’s “out of my hands” and “God’s will.”

I think the people in this world who are angry, hurt, and who struggle with depression and anxiety, see all the misery that is the world’s suffering, and we feel it more deeply, to a point where it is near unbearable levels.  That’s some of us fall prey to alcohol and drugs, anything at all to numb the pain, even if it ends in self destruction.

This week, I’ve started my four-day lung transplant evaluation tests at UPenn.  I’m 24 years old, and I’m somehow simultaneously used to but also feeling misplaced standing in the waiting room with the other 60+ year olds.  I was wheeled in a wheelchair for a 6 min walk test, and one of the technicians said to me, “You’re too young to be here.”  I just laugh it off and say it’s okay, I’m basically an old person.

I don’t fit in with peers in my age group.  I don’t know how to at least pretend I fit in, and chuckle lightheartedly at moments in life like just silly things with friends.  I might as well be socially the same as a hermit in the mountains, with a long beard in a dark stone cave.  I have to relearn it each time I try to really interact with civilization again.  I’m awkward.  No denying it haha.

Instead of wallowing and focusing on how pitiful I am in everything I’m going through/about to go through, I’m trying to focus on the positive: my inner strength, the inner strength of every journey and experience that’s made me who I am today.  My Asian heritage, I am an example of what immigrants go through, what it’s like to grow up and live in America.  My struggles and experiences as a woman, my eyes have opened up to the inequality and the things that are really not okay.   From how guys sometimes treat me, from the subtle to the obvious.  Being manipulated, getting hit on sexually, or finding out that a guy hooked up with your friend while pretending to go after you while you were ill.  All of that shit.  All of it.  #metoo.  I feel the weight of it all right now.  But I’m still standing here, because I’m empowered by the strength of the people around me.  We’re in this together, we’re fighters, and that’s what life is about too.

I have to find the strength to endure it all, and keep trying anyway, despite constant setbacks and constant misunderstandings and judgment by people who are blinded by their privilege.  I need to overcome my own judgment of me.  And I want them to want to be better versions of themselves, because I see the potential.  If I didn’t, I would have given up on myself a long time ago.

A Break Up

While I don’t claim to be perfect, in fact far from it, (read this post on Empathy, which makes me feel the burden of the world in addition to my own..), I refuse to lower my standards and expectations of the people I surround myself with.  Ever hear the philosophy that you are judged and influenced by the people you’re friends with?  That’s true.  More than ever.  I want you to at the very least, want to change for the better.  The beauty of never being able to reach perfection is that there is always, always, room for improvement and growth.  Don’t get me wrong – I don’t expect to surround myself with  “perfect” people- I expect us to grow together.  But what does one do when you actually feel like your own growth is stunted by others?  And if one is too “forgiving” or too accepting of the status quo, too content, too stagnant, how does anyone know how much more potential they can reach?  I’m dissatisfied because others are too complacent with themselves.

Then comes the frustration, but also the acceptance that we can’t force people to change if they don’t want to, as I am constantly reminded this past year.

I feel a bit like a failure, because regarding myself, I’m not sure I added much happiness or growth to anyone else’s life that I met this year – did I make a difference, a positive impact in their lives?  I don’t know, but I hope so.  Sometimes, we don’t always get to see the fruits of our labor and the ripple effect of the ripple we dropped in the water.

But at the end of the day, I’m burnt out, I gave it my all, and I have no regrets.  It started out good, but now I don’t know what the point of my presence is here anymore… It’s time to let go and break up.  At least for the time being.

I’ll be alone.  But I’ve felt alone for awhile now anyway.

The Onigiri

I don’t remember if I wrote about this before, but it’s my go-to story whenever a friend who’s having self-doubt or any other moments of apprehension talks to me.  It’s a story I tell myself once in awhile to remind myself of my worth, even if I don’t always see it.

When I was younger, my best friend got me into mangas, and my favorite was always Fruits Basket.  In one chapter, Kyo is this character who comes off angry but holds in a lot of pain and fear.  Tohru is the girl who looks at him in thought, and ponders, “Hm, maybe it’s on his back.”

The way Tohru sees the world is that every individual is an onigiri, and each contains a special ingredient.  However, the problem is that Kyo’s onigiri looks at everyone else’s, and is envious looking at the ingredients on their backs, whether it’s salmon, or tuna, or egg.  He can’t see his own.  He thinks he’s worth less because he can’t see his back.

Sometimes, pretty often actually, I find myself as Kyo, struggling to see what’s on my back.  I know some of you are thinking “please, I know what my special ingredient, I’m made of PRIME RIB, wagyu beef yo.”  And that’s great.  But a lot of us spend a lot of times staring at all the other onigiris’ backs and admiring their special ingredient.  So I’m here to tell you that you have something special on your back, and I see it.  You are made of worth, you were created unique, and everyone around you can see it even if people might not go out of their way to tell you or admit it to you.  I think we could help each other out by being the eyes for each other on what we can’t see.

Thoughts n Questions to Ponder

  1.  What are the main differences between pity, sympathy, and empathy?  Are there two different levels of empathy?  A.  Having gone through the same, or very similar experience where you understand deeply B.  Can understand as explained to you, as you willingly strive to seek out understanding of another’s experiences
  2. What determines what is art and what is not?  Is it enough that it makes one feel an emotion, or an opinion?    What about if something is crudely done in controversy? Perhaps this is how famous celebrities (Kim K, Andy Warhol, Trump, the Pepsi commercial) garner publicity knowingly and manipulatively
  3. Everything in life mainly revolves around the goal of Efficiency, which will lead to Effectiveness.  Example: Why Marie Kondo’s book on tidying and organizing became a bestseller as we have so much waste and crap in our houses.  It is how I learned to memorize my music with intent and away from the piano, more intensely in less time, but more mentally draining regardless.  Creative design should also focus on minimize waste, energy, time.  Should the same concept be applied for empathy?
    1. Things that are wasteful but shouldn’t be… 40% groceries wasted away in the average American household- why??
    2. Taco Bell sauce packets
    3. Throwing away or not having anywhere to place reusable teabags…

What are my strengths and current goals? Curiosity, focus, and intense determination

  1.  Korean / Spanish language, teaching Mandarin to my friend daily and weekly
  2.  Coding for Python
  3. Looking into animation (create short) practicing piano again and writing music (create a great piece)
  4. Empathy, Pondering, Philosophy
  5. Creating greater efficiency in waste, energy, time
    1. Re-organize lifestyle and bedroom
    2. Establish regime – wake up before 12pm, sleep at 2am, take morning/bedtime calcium supplements.  Stretches, drink 37oz liquids, work out, floss, mouthwash, skincare, haircare.
    3. “Is what I’m doing beneficial to me in the long run? Am I learning something right now productive?” –>  TEDtalks, cooking recipes (next up, ba wan), Lynda tutorials
    4. Be better at planning events
    5. Minimize sound pollution, food waste
    6. Develop photography portfolio so I can develop photoshop photos
  6. Passions:  women’s rights, Asian American rights, Disability rights –> how to save energy
    1. Suitcase with wheels/ moving chair
    2. Accessibility (ex:  more elevators in the city, better “wheelchairs”)
    3. How do we increase efficiency in obtaining empathy in each other in a simple, direct manner that makes sense?  –>  perspective of woman translating well for men.  Struggles of Asian Americans and immigrants, their story to become understanding or more relatable.
      1. Watch movies:  50/50 on reality of illnesses, The Godfather on moral dilemmas, Master of None on feminism, immigrants, ageism, hook up culture, racism, etc.
  7. Me:   Sound of heels clicking cleanly across the floor with a slight echo, rustling of a turning page, old smell of sheets of paper, fresh cut grass, moisturizing lip balms, Lupicia cookie tea and chocolate strawberry tea, slicing cucumbers, sizzling oil, matcha bubble tea, onigiri, ramen, glistening sashimi, glutinous gelatinous ba wan, emotional energy channeling through fingertips into keys, deep breaths, whirling thoughts, racing heartbeat, derp.

“You’re either a Blessing or a Lesson”

I found this quote somewhere on tumblr a long time ago, I think it might’ve been said by Frank Ocean but don’t quote me on that. This particular thought always stayed with me with the way I interacted with people.

As a homeschooled child, I never realized how naive my expectations for other people in the world were.  In a sense, I probably believed I was better than everyone else, in that I held myself to high moral standards, and my friend once told me that I was one of the few people she felt had such a moral compass who would never do the wrong thing or hurt someone.  My college years, I learned two things:  the full extent of my ability to hurt somebody I cared about (even unintentionally), and second of all, just how wrong the assumption that others hold the same beliefs, perceptions, or morals you do is.

I entered college beginning to experiment so that I could find my sense of self, both on a personality and aesthetic level- I made mild changes such as growing my hair long, got it ombre’d, began wearing some make up, piercing my ears, paying attention to the way I dressed more and how I carried myself.  It was such a sense of vulnerable freedom, to spread your wings out yet knowing that the immediate safety net of your parents weren’t beneath if you fell.  I tried to reinvent myself for the better- the cooler, more confident version of me.  To my disbelief, I was not quite a wallflower anymore, and even though I was still really shy, I forced myself to try to venture out my shell, and realized people not only seemed to notice me, but liked me.

However, my confidence was still in a budding phase, and the few people I felt a click with, I attached myself to quickly; I saw only their great qualities when they showed me a small act of kindness, and without realizing it, I subconsciously put them on a pedestal.  And then the first time they broke my trust or let me down, I felt myself spiraling downhill.  I wasn’t sure why my sense of other people’s emotions were so heightened, and oftentimes I can’t fall asleep at night being overwhelmed by all the problems that exist everywhere: I wish I could turn it off.

The intensity of my personality has given me the ability to observe and for the most part, see each individual clearly for both their flaws, potential, and beauty.  Everyone possesses both “good” and “bad” qualities, and these traits are what make them unique. I grew up seeing the world in black and white, but now I see that many things fall in the gray. Things don’t always work out in life, and we might end up becoming lessons in other people’s stories, but that doesn’t mean we should stop striving to be blessings.

As for ourselves, once we realize not everyone around us think on the same wavelength, we can reach a better understanding and be more tolerant and take things less personally.  If someone wrongs you, they are simply a lesson; move on, and cherish the ones who are blessings.

Embrace your strengths, and continue improving the rest.

Pet Peeves

  1.  When people go “aww” or even sometimes, “I’m sorry” or “I’ll pray for you” and usually end it at that – lessen filler words and replace them with something useful of substance; don’t try to sound like you care, just care.
  2. When people lie  – it’s all about integrity.  All it takes is one lie for someone to distrust you forever.
  3. When people gossip (when you talk about someone else for no reason) – mind yo own business… don’t start drama for no reason.
  4. When people can’t spell or mix up basic grammar (ex:  your and you’re, they’re and their, seperate vs separate) – automatically disqualified from any romantic prospects
  5. When people spit randomly while walking

I probably have more, but these are all for now.

Fears

My deepest fears?

I die forgotten and alone, never having made a positive impact on anyone in the world before I leave.

The realization that I will either lose someone I love deeply or they will lose me first- one of them has to happen.

That I will never feel like I deserve to be loved or accepted.

That I don’t have the energy or strength to go through the next phase of suffering.

That I bring more hurt and pain to someone I fall in love with than I should.